FDA Workshop on Enhancing Adoption of Innovative Clinical Trial Approaches
From 19 to 20 March 2024
At : Hybrid
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From 19 to 20 March 2024
At : Hybrid
From 23 to 24 April 2024
At : Milan, Italy
From 29 April to 01 May 2024
At : Philadelphia, USA
From 15 to 17 May 2024
At : Brussels, Belgium (hybrid)
From 16 to 19 May 2024
At : Beach Rotana, Abu Dhabi, UAE
From 23 to 25 May 2024
At : Shanghai, China
From 27 to 28 May 2024
At : Bari, Italy (hybrid)
From 31 May to 01 June 2024
At : Berlin, Germany
From 01 to 04 June 2024
At : Berlin, Germany (hybrid)
From 01 to 04 June 2024
At : Berlin, Germany
From 07 to 08 June 2024
At : Los Angeles, USA
On 08 June 2024
At : Los Angeles, USA
From 12 to 14 June 2024
At : Paris, France
From 18 to 21 September 2024
At : Ljubljana, Slovenia
From 26 to 28 September 2024
At : Kansas City, Missouri, USA
From 26-28 September 2024, Global Genes will be holding their annual Week in RARE, featuring the RARE Health Equity Forum and RARE Advocacy Summit.
In preparation for the event, Global Genes has issued a call for special interest session proposals. Submissions are welcome for both traditional presentations and panel discussions. Learn more here.
From 05 to 07 November 2025
At : Prague, Czech Republic
The European Reference Networks often organise educational webinars and other online meetings for their members and/or other interested parties. Below is a list of some upcoming events that may be of interest to our readers:
The EJP-RD is holding workshops aiming at training ERN researchers and clinicians in relevant innovative themes with a cross-ERN added value. These 2-days ERN workshops are open to interested persons (clinicians/scientists) affiliated to ERNs or Affiliated Partner Institutions.
Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Topics have to be proposed by the ERNs or by investigators belonging to EJP RD beneficiary institutions. Registrations are now open for several workshops.
From 04 to 05 April 2024
At : Lisbon, Portugal
From 4-5 April, 2024, the ERN ITHACA is organising the annual European workshop on the multifaceted care and research of genetic neurodevelopmental disorders (EuroNDD). The two-day workshop is organised around six themes, covering areas relevant to clinical care, pre-clinical research, and social aspects of disease. Through a series of lectures, presentations, and round tables, the workshop will facilitate exchanges between members of various disciplines in order to disseminate knowledge about basic and translational research involving patients with neurodevelopmental disorders.
Participation in EuroNDD is free of charge, however registration is required due to a limited number of available spaces. The call for abstracts runs until 30th November, and registration is open until 22nd December.
From 17 to 19 April 2024
At : Online
From 17-19 April 2024, the ERN-RND will be holding their annual Spring School with a focus on Deep Brain Stimulation in Dystonia. Registration is not open yet, but a preliminary programme has been made available giving an idea of the topics which will be covered during the workshop. For more information, visit the network's website or contact Christine Diaite-Hecht (Christine.Diaite-Hecht@med.uni-tuebingen.de).
From 27 to 28 June 2024
At : Hanover, Germany
From 27-28 June 2024, the ERN RARE-LIVER will be holding their 5th annual workshop on research in autoimmune hepatitis in Hanover, Germany. The two-day event will feature updates on ongoing clinical project, diagnostic and predictive improvements, and the understanding of AIH pathogenesis, as well as keynote lectures and a workshop on data curation and AI approaches. During registration, participants are asked to specify whether they would like to propose a new project, present an update on an ongoing project, or present preliminary research data. The workshop preceeds the 20th HepNet Symposium at Hanover Medical School, a national symposium with special sessions in English which may be of interest to participants.
The Medical Research Future Fund has several grant opportunities open for submissions which are relevant to rare diseases. These opportunities may be of particular interest to teams based in Australia. They are:
The Fondation Maladies Rares and association Bardet-Biedl France (BBS France) have formed a partnership to support and stimulate biomedical research on pigmentary retinopathy for the improvement of Bardet-Biedl syndrome (BBS). All biomedical disciplines are eligible. Projects must explicitly formulate a research question addressing issues specifically related to pigmentary retinopathy, and must demonstrate their novelty, feasibility, and the expertise of the researcher(s) involved. Financial support up to 90,000 euros is available over a maximum duration of 24 months. Proposals must be submitted by 4 April 2024 at 5pm CET.
The Innovative Health Initiative (IHI) has announced the launch of IHI call 6 and IHI call 7.
Call 6 is a two-stage call for proposals with the following topics:
The initial submission deadline for call 6 is 16 April 2024 at 17:00 CET.
Call 7 is a single-stage call for proposals with the following topics:
The deadline for call 7 is 22 May 2024 at 17:00 CET.
Orphanet is hiring for an Administrative management assistant. The job listing is available here.
If interested, please send your CV and cover letter to jobs.orphanet@inserm.fr.
Orphanet is looking to hire a Web developer - Python. The job listing is available here.
If interested, please send your CV and cover letter to jobs.orphanet@inserm.fr.
Orphanet is looking to hire a Scientific monitoring and content acquisition officer. The job listing is available here.
If interested, please send your CV and cover letter to jobs.orphanet@inserm.fr.
A new episode of Rare on Air, EURORDIS' podcast dedicated to rare diseases, is out now. In this episode, released specially on Rare Disease Day, host Julien Poulain sits down with three influential advocates to discuss achievements of the rare disease community worldwide.