RDI launches Mapping Rare website
Rare Diseases International (RDI) has launched a new website, Mapping Rare, which highlights achievements of RDI member organisations around the world. The interactive webpage allows visitors to visualise the global reach of the rare disease community, and to learn more about the inspiring and innovative ways groups around the world are finding to support people living with a rare disease and their families. The initial achievements highlighted by Mapping Rare include a humanitarian mission the Ukraine by DEBRA International; an awareness campaign in Malaysia; the creation of a national rare disease network in Canada; and a successful campaign to improve education options for children with rare diseases in Tanzania, among others. Learn more about these and other important achievements by visiting the Mapping Rare site here.
To celebrate the launch of Mapping Rare, RDI held a webinar on 1 March which featured all participating organisations along with three keynote speakers. A recording of the event is available here.