Rare Digital Disease Day 2021 : Online but together !
ReadERN News
ERNs and Brexit
ReadERN: Launch of an exchange Programme for healthcare professionals in European Reference Networks
ReadERN ReCONNET : RarERN Path, a methodology towards the optimisation of patients’ care pathways
ReadEuroBloodNet : Webinar available on Cutaneous Lymphoma
ReadERN CRANIO : Guideline on craniofacial microsomia
ReadERN EpiCARE : Clinical practice for selected rare epilepsies survey results
ReadERN-EYE: Launch of the "Rare Eye' Com" app
ReadERN-EYE : A new website dedicated to the REDgistry is available
ReadERN-LUNG : COVID-19 in pulmonary hypertension patients survey results
ReadERKNet : COVID-19 in children treated with immunosuppressive medication for kidney diseases
ReadERN-RND : "How to Improve Access to Care for Huntington Families" meeting recording is available
ReadERN-RND : The webinar "Improving care for rare disease patients in Europe – Rare Disease Day" will take place on Tuesday
ReadERN Rare Liver : Survey on Covid-19 in patients with autoimmune liver diseases (AIH, PBC, and PSC) launched
ReadERN RARE-LIVER : SARS-CoV2 vaccines and other vaccinations for patients with rare liver diseases
ReadERN RARE-LIVER : The lay summary of the ERN RARE-LIVER Position Paper : Second-line and Third-line Therapy for
ReadERN-SKIN : 4 patients journeys are available
ReadERNICA : "CAN EAT—Care and Nutrition in Esophageal Atresia" video available
ReadVASCERN : New Pills of Knowledge (PoK) videos are available
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